Hints Autism Gives Us

We have all heard of the dreaded meltdown. I’ve written about my own meltdowns and how I view them. Those moments of terror in which we become a force of nature while our nervous system purges all of it’s stored anxiety. For some of us, we have triggers where the anxiety is instantaneous. For others, we have a tipping point in which the anxiety has reached its threshold and the sensory overload meltdown runs its course. However, what if you diverge from your normal pattern of meltdowns?

Usually, my meltdowns are completely sensory-related and I will reach a tipping point, as mentioned above, and out it, all comes out. I have no control over it. (Meltdowns are involuntary for those of you who don’t know.) On a normal meltdown day, I may throw things, say things I don’t mean, punch a wall, hit my head, stomp my feet, and then it’s over. I recover, usually in the shower, and then sleep for hours as my body adjusts to the neurological reset it just experienced. I get up later and get on with my life. However, what do you do when your meltdowns for no apparent reason takes a turn for the worse? A potentially fatal turn?

In the late spring/summer of 2019, my meltdowns did just that. They became a threat to my life. I had hit my head and had so many concussions that landed me in the ER that my insurance company called to make sure I wasn’t being abused. No, I told them, I‘m just Autistic. My meltdowns increased in frequency and intensity. I went from having an inconvenient meltdown once every 6 months or so to having them once a month or shorter intervals. I have a scar on my left wrist where they had to go in and reattach ligaments that were injured during a meltdown. I won’t go into details of the rest because they may be triggering for some. Needless to say, I was actively fearful for my life. I reclused and avoided all stress. Friends that didn’t understand the symptoms of Autism were dismissed because I was too high strung to properly educate them. What was going on with me?

At first, we thought it was my recent weight loss that was throwing off my balance but when it calm down as expected; I recalled that I had read in several blogs, articles, scholarly papers, and more, that an autistic person may have an increase in meltdowns if there is an internal illness that went untreated. Cysts, impacted teeth, IBS, pituitary tumors are just a few to mention. This isn’t only in non-verbal Autistics either! This can happen in Autistics that are considered low support needs as well. When I read this I realized that my nervous system may not actually be trying to kill me but instead, it’s alerting me to something serious, I became an Autie with a mission.

I made appointments with my Neurologist, Primary Care Physician, Psychiatrist, Gynecologist, Audiologist, and all the other specialists I could think of! I have had more MRI’s, CT scans, and X-rays this year than I have had in my life! Not to mention the EEG and the plethora of blood work. I didn’t have any latent STD’s, my pituitary tumor was well under control. I saw something in an old overlooked test result from years back that implied I may have low immunoglobulin’s so I insisted my doctor look into that as well. My routine yearly checkups came around and I put off my mammogram because I had been so overwhelmed with the number of medical demands I had put myself through trying to find answers. I just couldn’t do it because I might risk a meltdown. I rescheduled it for December. A couple of months out.

The prior year, 2019, I felt a lump, thickening, something was wrong in my right breast. After some testing, I was told it was just dense breast tissue so putting off my mammogram seemed a pretty low-risk decision. I went to my mammogram in December and 4 days before Christmas I was told I had two irregular masses in my right breast. The timeline fits perfectly. By the time you feel breast cancer, it’s been in your body for 2-5 years. I can do the math and if my body detected it in 2018 before I did it would have begun to cause major meltdowns in order to warn me. However, I didn’t know how to interpret my meltdowns as a warning of impending medical trouble.

Last week I went in for a biopsy and it was confirmed that I have invasive breast cancer. Even since my mammogram in December of 2020, it has grown. Soon I will be meeting with an Oncologist to discuss surgical options. While I’m terrified I’m also thankful. Hopefully, with treatment and healing, my meltdowns will subside and I can live peacefully again!

Meltdowns aren’t always sensory-based, for me, they are rarely emotional so when I was confronted with meltdowns that seemingly had no explanation it was terrifying. I’m glad I have found the answer within as to why my meltdowns were so out of control and I hope beyond hope that this may be an insight for someone like me going through the same thing.


Life at the Corner of Ableism and Sexism

Wasabi Horseradish is not a Pea!

Six or seven years ago I had a little disagreement with my significant other and a familial male of mine. The contested information was that Wasabi is a Pea. Which it is not. Wasabi is a type of horseradish that grows in Japan. Most of the Wasabi in the US is regular horseradish dyed green with food coloring. My SO sided with the other male when the other male doubled down on his statement. I dropped the subject and shut my mouth because that is what I am supposed to do. Right? Don’t question men and look pretty.

As a female assigned female at birth I have learned by trial and error that women aren’t to correct men. If women are right and men are wrong we aren’t to point it out. When men make a mistake because they didn’t listen to the woman’s advice we are to tell them they were right anyway. Men lead, we follow. It’s a tale as old as time. However, when it comes to Autism in the eyes of the world it decreases your credibility despite evidence to the contrary. When you have a vagina, it’s worse.

Many people on the Spectrum have an average to genius IQ including the women. However the way our brains process information and auditory delays lead people to believe our perceived “slowness” is equivalent to having lower intelligence. You include the fact that I’m short, cute and curvy in the mix and we have a cocktail that is disastrous. 

I know things because I have the same hunger for knowledge that men on the spectrum do. I knew the information on Wasabi was wrong because I had read about the rarity of Wasabi that naturally grows along the rivers and streams in Japan. (Fun Fact: Most people in the US have never eaten actual Wasabi!) I’m a Sushi lover and if I love something I will research the everloving heck out of it! But that didn’t matter. Instead of hearing me out I was shut down. This is a pretty normal thing for me to experience. I hate it.

I feel for my Aspie Sister’s and how we have valuable information to share with the World yet we are marginalized by society. First and foremost because we are female. Second because we present information in the common Autistic format. Straightforward and factual. Which then makes us seem like a disagreeable female. Which is heart breaking and it needs to stop. 

While I would like to say I have a revolutionary plan to change the World once and for all, I do not. The best advice for the World is to assume egalitarian ideals across the board. The old adage of not judging a book by it’s cover comes to mind. A pretty face can have an equally intelligent brain. Slowness might not be a sign of lack of intelligence but the work of a mind that has so much information in it that it might take longer to produce an answer. Like a computer with a full memory. The two together can be a deadly cocktail or a wonderful resource. Ultimately it’s not up to women or Autistics to decide. It’s something the World has to embrace. I hope they choose wisely.